Feedings - my mood, disposition and outlook revolve around them. We have up days and down days we have up feedings which could swing down for the next. The preemie roller coaster continues. The NG tube is a blessing because it has allowed us to push as much food as she can handle and grow her to a healthy 7.5lbs and we are able to get the meds in her rather easily. However, I wish with all my being that we did not need it anymore. Because it can't last forever and the next step is surgery for a G-Tube, we hang on every feeding hoping that she will take the whole bottle. I am constantly afraid that I'm going to do something to cause an oral aversion or that she has some severe developmental issue prohibiting her ability to eat. This is my ultimate life challenge.
We learned in today's appointment that our approach needs to grow and change with her. We are grateful to have guidance and will be meeting with OT (Occupational Therapy) more regularly now, to avoid missing out on some crucial tactic.
Cora is growing, developing and maturing, bottom line. I have to focus on this and know that we will get there, on her time. The rest doesn't matter.
We learned in today's appointment that our approach needs to grow and change with her. We are grateful to have guidance and will be meeting with OT (Occupational Therapy) more regularly now, to avoid missing out on some crucial tactic.
Cora is growing, developing and maturing, bottom line. I have to focus on this and know that we will get there, on her time. The rest doesn't matter.
No comments:
Post a Comment