Tuesday, February 4, 2014

Thank You

I have neglected to give a huge thank you to our family, especially our parents, who have been so supportive throughout the whole process. They have done anything and everything they know to help us get through this stressful time. Stella may be the biggest winner with all of the wonderful attention that she's received from her grandparents and aunt and uncles. I'm confident we can keep it going after Cora comes home too! wink wink!!

To all of our followers, thank you, too. Even though I don't know exactly when you're thinking of us, I see the stats on this blog and I'm blessed to have such wide-reaching support. It's also pretty awesome feeling to get over 150 likes to a photo on facebook or to come home to a meal dropped off by a friend. Truly, from the bottom of my heart, thank you.

They say that saying thank you is extremely therapeutic, so I'm trying to come-up with a really great thank you to my colleagues who are donating PTO to me (and Cora!), which will greatly benefit Matt & Stella too. I really can't wait to get out of the hospital grind and instead spending quality time with my girls and my hubby!

Coming off of a call with Matt and Cora's doctor to discuss her recent set-backs and primarily the amount of emesis she's had, recently (last night and in last 2 hours), it appears that Cora's belly x-ray is abnormal and inconclusive - typical! The doctor believes that she may have a little ileus and so they are giving her bowels time to rest, so, her feedings have stopped and she is getting IV fluids. Now that UTI has been ruled out, and NEC is ruled out and her blood work is showing nothing out of the ordinary other than elevated white blood cells, which is normal after receiving vaccines, it appears we are in another situation that we'll never really know what's going on. No matter how often I find myself in this situation of unknowns, I still don't feel comfortable with it and it hasn't gotten easier! BUT - while it is unlikely we'll ever know what's causing her "sickness," it's highly likely that she will work it out and will get back to growing soon. When the doctors say this, then I do feel better!

This brings me to thanking the staff at the NICU... I have every confidence that you know what you're doing and even though I may not like some of the decisions, I trust that she is in the best care that could be. I am dumfounded by how awesome the bedside manner is of the doctors and providers. When the Attending doctor who oversees the PICU knows who I am and who my baby is, after only a few short meetings, I feel pretty special. When her nurse practitioner goes out of her way to give me an update, no matter how small, I just know that people there truly care about her and want Cora to grow out of that place! When just seeing that a nurse is taking care of Cora helps me breathe a sigh of relief, it's evident that something  more than just trust and understanding exists in this place and connects me to Cora's excellent care.

Today is a rough day, for my baby, but her daddy is there to hold her and tell her that her mommy loves her and that everything is going to be alright. Then, he will come home and do the same for me. I love you, Matt, and I know we're going to get through this.


1 comment: